Support for Leprosy Research Teams Via the Leprosy Research Initiative (LRI)
- Endemic countries Country
- 207.820 € Investment
- Each year Length
The Challenge
Until the launch of the Leprosy Research Initiative (LRI) in 2013, leprosy research had no structured pooled funding mechanism.
Funding was mainly from individual ILEP partner organisations but rarely from external sources. This limited the effectiveness and scope of leprosy research and affected the ability to properly address leprosy-related diagnosis, disability, transmission, stigma and discrimination.
The solution
The LRI was set up as a joint initiative by several ILEP partner organisations, including NLR, ALM, DAHW, Effect Hope, The Leprosy Mission International, Damien Foundation and the Anesvad Foundation.
Its aim is to establish and maintain joint funding for leprosy research and to secure additional funding from external sources. The Anesvad Foundation contributes financially and is also a member of the Steering Committee and the Executive Group of the LRI. In addition, it works hand in hand with experts – such as Dr Lucrecia Acosta – who provide technical support when it comes to evaluating proposals.
Impact
The LRI has provided funding for prioritising leprosy research that is aligned with the Global Partnership for Zero Leprosy (GPZL) agenda.
This has brought about significant advances for diagnosis, reduction of disability, understanding how leprosy is transmitted, and mitigating stigma and discrimination.
Collaboration with other organisations and experts has bolstered global leprosy research, improved the quality of life of affected people and contributed to more effective public policies in the fight against this disease.
Related projects
See other projects where we fight Neglected Tropical Diseases
A clinical trial to reduce the treatment time for the Buruli ulcer by half
After decades combatting the Buruli ulcer, which affects thousands of people in over 33 countries, we are still unaware of its exact mode of transmission. We know it is related to environments with stagnant and unsafe water.
Strengthening the African network of laboratories for Buruli ulcer research
There are currently no unified protocols for detecting Buruli ulcer. Although the WHO sets guidelines for the control of NTDs, many laboratories in Africa do not have standardised protocols for sample collection and subsequent screening and diagnosis of these diseases.
Simultaneous diagnosis of five skin-related neglected tropical diseases (skin NTDs)
Through this initiative, we are contributing to strengthening public health systems, from small aid stations in the remotest villages to health centres in reference-point towns.
A New Early Detection System for Buruli Ulcer
This will increase early detection, reducing the number of severe cases of the disease, and in turn will lower expenses for patients and their families as there will be fewer severe cases requiring intensive care.
Better Mental Health for People with NTDs in Nigeria as a Result of Integrated Care
This initiative will support the Nigerian government and other civil society organisations to develop and pilot-test a comprehensive intervention to integrate mental health and NTDs.
An Initiative to Find Innovative Interventions for the Comprehensive Treatment of NTDs
These lessons learnt in Liberia can also be applied to other settings in the region, thereby contributing to a regional exchange of scientific knowledge. Finally, the findings could also be adopted into public health policies in Liberia.
Creating Scientific Research Opportunities on NTDs for Young Professionals from Countries Where these Diseases Are Endemic
Encouraging young researchers in countries where skin NTDs are endemic will contribute to the development of a new generation of scientists who will be better able to understand and manage the challenges of these diseases.
Reducing Stigma and Disabilities
Via this research project we seek to guarantee the Right to Health of people with disabilities, with a special focus on those with NTDs in Côte d’Ivoire and Benin.
A New Clinical Study to Improve the Treatment of Leprosy and Prevent its Harmful Side Effects
Via this study, we will enhance capacity-building, strengthen active integrated case detection, as well as enable early detection and accurate diagnoses.
