Detection and treatment
Kpele: living with Lymphatic Filariasis in Aboisso
The testimony of Kpele and his mother highlights the need for accessible, continuous and stigma-free healthcare.
During a visit to the Aboisso region in south-eastern Côte d’Ivoire, we met Kpele Assamala Rose, a 13 year-old girl living with advanced lymphatic filariasis. Her mother, Houo Tanoh Christiane, agreed to share her experience in order to raise awareness of the challenges faced by many families in similar situations.
The first symptoms appeared when Kpele was three years old: persistent swelling in her leg that increased over time. Access to diagnosis was slow, hampered by a lack of information, distance from health centres and financial constraints. Her mother recounts how the initial lack of knowledge caused concern and, in their community, also stigmatisation.
Despite the difficulties, they managed to start treatment. Medical care came with the support of local organisations and Anesvad Foundation, which have accompanied the process with clinical monitoring and community support.
Kpele explained how the disease has affected his daily life: difficulties in getting around, interruptions in his education and changes in his relationship with other children. Even so, he remains keen to continue his studies and participate in school life.
His mother emphasises the importance of clear information from the outset, as well as accessible health services and trained staff. She also highlights the value of the support received, both medical and human.
Filariasis not only affects the body, it also limits access to education, mobility and social participation.
Both agree that it is necessary to strengthen access to medicines, improve the mobility of health personnel and continue awareness campaigns to reduce stigma. They consider it essential that other families in similar situations can count on sustained support.
This testimony provides a concrete perspective on the effects of lymphatic filariasis on daily life. Beyond the clinical data, it shows the need for public health policies that prioritise equity, prevention and comprehensive support.